Hello. I think I'll just start at the end of the meeting with my second opinion so that you all will understand what transpired. I have cancelled my surgery with my surgeon in Orange, CA and have scheduled surgery with the second opinion surgeon for the end of next month. As I have said before I believe in getting second opinions especially if your gut is telling you something that you need to listen to and mine was, so I am glad that I met with her. The upshot of the two hour visit with the surgeon and her nurse (an hour for each which made us all feel that we were being listened to) was that I do have other options and it is necessary for me to take some time and think this through completely. Although my "window of surgery" is now 3 weeks gone they are confident that my wait time will be okay and I will be taking an adjuvant medicine in the meantime.
There are studies being done in San Diego county that aren't being done in Orange county that I could possibly be a candidate for, there is an immediate reconstruction option that would entail a long surgery time but healing and recovery would a good prognosis and therefore another viable option for me and let's not forget that just because I choose a bilateral mastectomy that I would be "taking care of the cancer permanently" and not have to be bothered with it anymore. Oh no not so! Realize that too many women today are going that route and not realizing that as in my case with so much history of cancer in the family that "it wouldn't pop up somewhere else in my system". Was that a horrible statement to hear? Not really because that is exactly why my oncologist did the chemotherapy first, was to arrest the growth and or movement of the cancer in my system to another place. I am glad that I went through the last 90 days for a good reason. Well, okay glad might not be the correct adjective to use but I am comfortable with the fact that my course was what it was and that I am on the upswing of my treatment plan. That being said, tomorrow I am having a MRI done to confirm that the left side is not involved and then from that point we (my surgeon and I) will finalize a surgical plan that is now tentatively scheduled for Sept 24. That gives me a good month to get stronger as in all honesty in speaking with the oncologist today we decided that my energy level is not ready for surgery and that what I have been experiencing these last 3 weeks was "probably" exacerbated by helping Brian move and such is also just what the chemo does to your body, you are or I am going to be fatigued and it will pass. So once again I need to listen to my body and just deal with it and know that eventually I will be able to walk up a flight of stairs without feeling the wind knocked out me and I will be able to mix up a brownie mix without having to ask someone else to do the mixing. It is funny when you think about it and let the laughter in as the alternative is a waste of energy.
I am GLAD that I listened to my wee small voice and went this route as oddly enough so many people thought that I was going down a path that had a drastic solution, but were unwilling to tell me. Do you think they are afraid of me, why? What would give someone the idea that I might in total frustration lash out and verbally take their head off? Me? Of course not, oh okay have any of you seen me lately? I know that my reputation precedes me, but really I do listen to all of your comments, opinions, thoughts and prayers. And then as anyone of you will do, I do exactly what I want. No No just kidding. Keep tuned in for my updates, they are changing every day.
Hugs, Deb
Glad you are going with your gut feeling. As long as you keep that sense of humor about yourself I have no worries about you Debi! That and your strong faith, and personality will carry you through the rest of this I am sure!
ReplyDeleteAh, you sound more like your real self today!
ReplyDeleteGlad you found a path you are satisfied with.
You are doing great, and we all are happy for that! Keep us laughing, keep talking, and most of all... keep resting and getting off your feet when your little voice says -"enough!" You know you have lots of hugs and support from many people! Rest on that!
Love, :) Sue
I also am glad you went with your gut which is 99.999% right every time. Just take it easy and rest someday soon you will once again be superwoman and do everything on your own and own terms....all my prayers everyday....Paula
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